Hi!  Today Steve and my sister Heather joined me for my appointment.  Not much to mention.  My counts are good and my GvH is clearing up.  I have my next appt. next Wednesday again, but from there I should be able to start going in every other week!  I think it is going to feel odd, kinda “free” so-to-speak!  Dr. P is still playing around with my medicine dosing, trying to get me off the steroids as soon as possible, without doing it to fast.  He talks confidently about “a year down the road” which is a comforting feeling, but still keeps a close eye on my healing and weekly progress, which is also comforting for the mind and soul.

Steve and I have a friend that we met at City of Hope, Bart, who had a stem cell transplant just weeks before me.  We became companions, both having our ups and downs in the hospital during recovery.  We enjoyed art classes together, playing cards, bingo, and just talking about our situations and lives, and how AML has impacted our lives, good and bad.  Bart went home on target a few weeks before me back in September, but was readmitted with GvH complications.  He has been in and out of the hospital several times since.  He is still struggling with major GvH and possible allergic reactions to specific meds that we must be on after stem cell transplant to avoid rejection issues.  Bart’s body is not reacting in a positive way, although his incredible strength and mind are getting him through this tough time.  PLEASE keep Bart in your thoughts and prayers.  Bart went home again yesterday in the care of Hospice.  Bart, if you are reading, you are always in our hearts, thoughts and prayers.  Steve and I can’t wait to visit with you, Leslie, and meet your kids!

Hug your family today!

Karen