Hello! Looks like I’m back in action posting updates. I hope you are all enjoying your beautiful summertime! I know we are! We have been able to spend great time with family and friends. My neice Delaney and 2 nephews, Matthew and Jax have been here with my mom and their dad for a better part of the summer. Its been great having them around. It would only be better if my sister Hillary was here with them….
Can you belive that yesterday was my 11 month post transplant anniversary? I am still dumbfounded that it has been that long already! I visited Dr. P today up at USC, and he couldn’t be more happy with my progress. I am down again on the prednisone (steroid) to 10 mg per day. He said he was really happy with that, and not to worry about the dosage because 10 mg is what a normal body would produce on its own on a daily basis anyway. We will continue to lower my dosage over time, but can’t risk doing it too fast and have to start all over again. I’m perfectly fine with that! All my blood counts look great, and my GvH symptoms, although still lingering, are a good thing proving that my “new” system is up and running and strong! Can’t argue with that. I’ll take the skin discoloration, sore hands, and mouth sensitivity any day!
Dr. P was so impressed with my physical ability, fitness level and overall appearance (and of course, my test results), that I don’t have to visit him for one month! This will be the first time that I don’t see him for that long of a period. When I do return I will be celebrating my 1 year anniversary of my transplant! Coincidentally, (although I believe it is fate), that will be the weekend of the Disneyland 1/2 marathon that I love so much! My goal last year was to run in the race and this year I WILL be running!
My next set of tests at one year will be health based tests, such as bone density, mamo, pap, and tests that will determine if I need all of my immunization shots again. We will also check hormone levels to determine if the radiation has put me into menopause….
I LOVE LIFE, AND ALL OF YOU! Keep your prayers flowing and your spirits high!
With Grace and God,
Karen
I have not looked on this websight lately. I was so pleased to see you have written. I’m so happy for your recovery details Karen. I pray for your health and comfort alot. I thank God you are still improving. You are amazing to me. You are the most positive person I have ever known. I really mean that. You are an inspiration to us all. I love you dearly Karen and will continue to pray for you and for you to get better and better. Enjoy Disneyland with your family..
Happy one year. i love you so much. a year ago today the kids and i were all piled in your moms car to come see the miracle of hilda and your strength. We will never forget that day. Love you.
What wonderful news! It is remarkable that you will run the Disney half…God is so very good. I second the McElmurray’s post!
SO happy for the great report! God is good! Blessings to all of our Cali family! We love y’all and will keep you all in our prayers!